On the same day, two friends told me of a helpful website for those of us with ALS - www.patientslikeme.com. One learned of it in BusinessWeek magazine and the other on NBC News. I immediately signed up and now have access worldwide to others with ALS so we can share our stories and what we're learning about this disease. The first person I heard from was in England. We share what's been working and what hasn't. One of the most encouraging parts is that so many I've talked with on the site are believers who have many praying for them like I do.
Only about 300-400 have ALS in the entire state of Washington. 90% is random or sporadic while 10% is genetic or inherited. I am in that 10%. Carol and I are part of an ALS support group that meets locally each month, although we can't be there every time. The Evergreen Chapter of the ALS Association is simply remarkable. We are so impressed. But, when it comes down to what really matters - your prayers, love, encouragement and support are at the very top of our Thanks to God list!
Friday, January 2, 2009
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7 comments:
Pastor Marc,
Thanks for sharing with us your experiences and thoughts. We love you and pray for you every night. Thanks for including us on your journey.
Love,
Dennis, Mary Trepanier and Kids
Thank you for sharing with us Marc and taking the time for an update. We enjoyed your family picture in the justabyte. It sounds like you are doing everything possible. Joining a support group should be helpful and the group will certainly be blessed with your presence just as all of us have been. You are in our prayers and know that we are all on this journey with you. lovingly, Larry & Nancy Harvey
Hi Mark!
I'm thankful that you've started this blog to keep us updated on your progess and sharing your thoughts and feelings. You and your family and been a blessing to me and my family in the past. Please know that you and your family are in our thoughts and prayers. You truly are an inspiration! Adrienne Rice
Dear Marc....We continue to intercede for your healing from a distance. There is no distance with our great Physician. We are believing for divine healing in your body. Glen & Karen
When I read this I saw many answered prayers! Thank you gor keeping us all updated!
Emily Madel (Sleipness)
emilykorens@yahoo.com
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